You are not alone.
Together we are Stronger Than Sarcoidosis.

Cathleen Terrano


Cathleen was diagnosed with sarcoidosis in July 2010, and that was the moment that her life changed. As a lifelong dancer, sarcoidosis affecting her ability to dance was heartbreaking. She has also had to give up her full time career as a pharmacy tech; eventually, even a part time work in a doctor’s office became too much for her, and she has recently filed for Disability. Cathleen has also been diagnosed with Hashimoto’s Disease (hypothyroid), connective tissue disease, small fiber neuropathy, autonomic neuropathy, postural orthostatic tachycardia (POTS), a large hiatal hernia, GERD, and a MTHFR C677T gene mutation.

In addition to dancing herself, Cathleen has been a dance teacher, choreographer, and judge for regional and national dance competitions. She has been awarded many prestigious awards from Who’s Who Amongst America’s Teachers for many years, as well as Manchester Who’s Who Among the Best Teachers. Cathleen also co-founded Roll Call Wheelchair Dance Long Island, where she believes that everyone of all abilities can dance. She is currently running zoom dance classes two (2) times a week, and loves every moment.

Cathleen is in her 5th year as a Patient Ambassador for the Foundation for Sarcoidosis Research, and Vice President of Sarcoidosis of Long Island. She is a Moderator for the National Online Sarcoidosis Support Group, a certified Facilitator for the Better Breathers Club and The American Lung Association, as well as a Patient Leader for WEGO Health. She is also involved with Compassionate Choices. Cathleen is looking forward to this new endeavor with her close friends and other sarcoidosis warriors, Frank, Kerry and Cheryl! 

Cathleen lives on Long Island, NY with her husband Joe and their sons Matthew and Daniel. She has always taken an active role in their lives; family means a lot to her.



Our mission is to raise awareness, advocate, and educate about this rare disease called sarcoidosis. We aim to strengthen the sarcoidosis community with information, support, connection, and interactive events that focus on the physical, mental, and emotional aspects of living with this disease.
Stronger Than Sarcoidosis was created by sarcoidosis patients, for sarcoidosis patients, and we will always be patient-centered. We aim to support the sarcoidosis community, ensuring that all sarcoidosis patients know they are not alone. Together, we are Stronger Than Sarcoidosis.

© 2021 Stronger Than Sarcoidosis